April 19, 2024
Diagnosing PCOS: Because even gynecologists know almost nothing about the disease

In fact, there should be a lot of research findings on polycystic ovary syndrome, PCOS for short. In Germany alone, more than a million women are affected. When families have health problems when they have children, this hormonal and metabolic disease is often the reason.

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But the view of daily life in gynecological practices seems reassuring, at least when you talk to those affected about their experiences with the syndrome. The Gyncast team, Tagesspiegel’s gynecology podcast, has collected the stories of dozens of sufferers. Positive words about medical care are rare in it. Conversely, reports of inaccurate diagnoses and scientifically outdated advice dominate the picture.

How PCOS affects the desire to have children

A Gyncast listener recounts how her doctor initially suspected she was pregnant based on her symptoms. After an ultrasound, she told her the exact opposite of her: She probably will never have children. “She didn’t explain more,” says the young woman, who is currently studying to be a midwife. Only in this way did you get reliable information about PCOS.

Large-scale studies from Scandinavia have now proved this Women with PCO syndrome have a very good chance of having children of their own. The prerequisites are the right medical care and sufficient time and resources.

For Gynecology Chief Prof. Dr. Mandy Mangler has two reasons for the problems related to PCOS supply. For financial reasons, the topic has not received sufficient research attention for a long time. “There’s not a lot of money to be made there,” Mangler says on the podcast.

Furthermore, the syndrome moves on the border between different medical disciplines: on the one hand there is gynecology, on the other the hormone experts of endocrinology. Therefore, it is not always immediately clear who people with PCOS should turn to.

About Gincast
How does the female body work? Chief Prof. Dr. Mandy Mangler explains it once a month in the Gynecology podcast “Gyncast”. Subscribe to the podcast on Spotify, Apple or the podcast platform of your choice to never miss an episode.

Because the disease affects not only the menstrual cycle and fertility, but the whole body. In the podcast, the doctor explains how the syndrome can have various effects: from the obvious cysts on the ovaries, which give the disease its name, to the increased risk of diabetes, psychological effects or unpleasant hair growth. Furthermore, the prof. dr. Mangler advises on aids that those affected can use to lead a symptom-free life again.

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